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Support and Resources for Your Patients
A urea cycle disorder (UCD) is a rare disease, but resources and support are available to help with diagnosis and management if you suspect a UCD.
Patient Resources
Access these helpful UCD resources to share with your patients.
UCD Fact Sheet
Use this fact sheet to help your patients understand what a UCD is and how to manage it.
UCD Caregiver Guide
Use this guide to help your patients’ caregivers manage UCD and handle various life and emergency situations.
UCD Wallet Card
Use this resource to help your patients educate hospital or emergency room staff to help ensure blood ammonia is tested quickly and correctly.
UCD in Common
UCD in Common is an online community that shares stories, tips, advice, and more for people living with or caring for someone with a UCD.
UCD in Common Facebook Community
The UCD in Common Facebook page brings together a community of individuals facing the daily challenges of UCDs. Your patients can find tips, recipes, resources, and more to help them learn and be inspired by others living with a UCD.
Discover other organizations that may provide support for your patients with UCD.
UCD Advocacy Organizations
Rare Disease Advocacy Organizations
Research